Archive for the Glandular fever Category

Glandular fever #8 relapses

Posted in Family life, Glandular fever with tags , , , on June 26, 2017 by The Rock 'N' Roll Oatcake

After a good couple of months recovery since February these past few days I have been seeing the glandular fever (GF) symptoms come back. These have included my glands inflaming on the left side of my neck, under my left armpit and the right side of my groin. Also the general feeling of being unwell – always hard to describe but I think people who have had GF know what I mean, you just don’t feel your normal self and it feels worse than say a day when you felt tired or a little low.

I am pretty sure this relapse has come about as I approach the first anniversary of my dad passing away – in fact happy birthday dad as he would have been 71 today 🙂 Even though I am trying to keep my positive mind set and avoid stress, in the background my mind and body are thinking otherwise causing these GF symptoms to come back. I will try and keep calm as possible, keep taking the Echinacea and vitamins as although GF is back, each relapse is normally not as bad or long as the initial bout. Anyone with similar experiences please do share them.

Glandular fever #7

Posted in Family life, Glandular fever, Running with tags , , , on May 10, 2017 by The Rock 'N' Roll Oatcake

Having been well on the road to recovery these past few weeks I was hoping that I’d seen the worst of glandular fever (GF) off, however it has come back (or a relapse) this past week. My neck glands are sore/swollen, feeling generally ‘yucky’ and my stomach is playing musical ‘tunes’ all day! Trying to see what caused it, it looks like increased stress although I have been keeping stress levels down as much as possible. Trouble is however much you try to occupy your thoughts elsewhere, they soon come back to any issues troubling you and this in turn seems to have an adverse affect on GF.

I am determined this won’t set me back too much and I am keeping up my daily vitamins (B’s and D are the key ones for GF), although sadly my return to running is on hold again. I will get out and have a run soon though, that’s a positive to keep me focused on riding this GF relapse out.

There really does need to be more awareness made of GF and how it can have long lasting impacts on people, albeit at varying levels.

Glandular fever #6

Posted in Family life, Glandular fever, Stoke City FC with tags , , on March 7, 2017 by The Rock 'N' Roll Oatcake

Week 24 in the Glandular Fever (GF) House! Well if my poor sense of humour is coming back then I must be getting back to some sort of normality 🙂

In the past few weeks have had a few relapses where I have felt really ill with GF, however as I now know what is coming I know how to deal with it a bit better. It is about pushing yourself but within limits as it can make you more ill. Good advice here on the Patient forum. Knowing that fine balance takes some time and although I am still fatigued/exhausted at the end of each day I take heart in the fact I have done a little more or achieved a goal I set e.g. going to my first gig last weekend since last summer.

Having good support from loved ones, family and friends is a big boost as well. GF is a very strange illness in that medicines can’t help it, just a good balance of vitamins, healthy food (with the odd cake 🙂 ) and rest helps. Unfortunately some people with GF can develop chronic fatigue syndrome/ME (NHS Direct puts it as high as 1 in 10) and that requires a whole different series of medical and practical steps. My then girlfriend, now wife, helped me push through the barrier if you like to prevent this happening to me which was a real possibility back in November last year. Take control of GF and not let it control you, not easy believe you me but doable.

I am keeping positive, trying to keep the stress low (stress is one of the biggest triggers in GF and it reoccurring ) and enjoying/appreciating everyday things in life more.

 

Glandular fever #5

Posted in Glandular fever with tags , , , on January 24, 2017 by The Rock 'N' Roll Oatcake

For many glandular fever will be gone within a few weeks, however for some (and I am one of these) it can last for months the fatigue stage. As the NHS Direct website states: ‘While the symptoms of glandular fever can be very unpleasant, most of them should pass within two to three weeks. Fatigue, however, can occasionally last several months.’

Stress can bring it back, and also getting excited about things like say a trip out, can bring it back. You can’t win with this darn thing can you? Well you can, if you pace yourself and keep as positive as you can. That can be easier said than done, however focus on something you lie be it music, books, your family and loved ones, your faith (a lot of GF stories I have read the people have a string religious belief).

recovery

I have been feeling a little ill again in the past couple of weeks as GF has come back a bit, mainly as I have been doing a little too much. So trying to get the life/work balance right and it is by trail and error really, as unless you push yourself a little you will reach a plateau and not do much more.

This posting on the Patient forum for Infectious Mononucleosis sums it up nicely:

‘…it’s such a hard virus to deal with and it’s important people know there is hope and recovery at the end of the road for everyone reading this who is or has been struggling with mono/glandular fever and just feels weary and tired and scared, which is more than understandable given the circumstances.

It is different for everyone, for me I would say the biggest turning point came around after 9 months, and although it still took a little while after then to feel completely normal I was able to live a much more normal life from then on, so long as I paced myself and still took care. It did still take me a while to get back working full time again, but I think my confidence and things were shaken a bit too in that respect, and it’s important to phase things in and not just jump back in to the deep end, I think that definitely helps.

Everyone is different though, some people recover quicker, and often it’s a zig-zag kind of recovery, where sometimes you can get mini set backs and wonder if you’re back to square one – be assured that you’re not if feeling that way today it’s just part of the recovery process, and you definitely will get better – there is hope and recovery for everyone with this horrible virus, your body eventually gets on top of it and then it can harm you no more!’

Glandular fever #4

Posted in Family life, Glandular fever with tags , on January 17, 2017 by The Rock 'N' Roll Oatcake

After my busiest weekend yet since having glandular fever (GF) today and yesterday GF came back. However, I am managing it better and although my tongue feels horrible and has ulcers on it and my neck glands are up, plus good old wind is there, I still feel better than I would have done back in November. To be fair back in November I could hardly get to the end of the garden and back.

The hardest part now is doing enough but not too much, and the fact I am not used to being ill this long, nor are my family and loved ones used to this either. It is a strange illness in that not many visible signs can be seen, unless someone sees you every day they won’t see much change either when you start to recover.

I am still taking my daily vitamins and Echinacea plus walking for at least twenty minutes a day. You have to make and adapt your own routine as it affects each person differently, almost like GF pings around your glands and body organs seeing what ‘fun’ and havoc it can have!

I also keep a list of good moments in my Joy List. Fear not though I am not turning into some tree hugger 🙂

Enjoy yourselves and take time out to appreciate things.

everyday

Glandular fever #3

Posted in Family life, Glandular fever with tags , , on January 6, 2017 by The Rock 'N' Roll Oatcake

Interesting older feature on singer Ali Campbell of UB40 fame who had GF and said he felt like a ninety year old –

http://www.dailymail.co.uk/health/article-1357622/UB40-frontman-Ali-Campbell-road-glandular-fever.html

I can relate to that as now on the anniversary of fifteen weeks with GF I can now get out and about at a pace slightly above ‘stop’! From the outside people may not see much unless they see you day to day and can spot when you enter your exhausted state. I am currently easing back into work doing a 5-6 hour day WFH. I make sure I have regular breaks and have a wander at midday.

I am seeing how my body copes with the extra push each day, so far had one really bad evening this week when it came back and I felt like collapsing in a heap. I do get warning signs as my tongue gets irritated, including little ulcers on it,  my left hand side throat glands show red and I you feel generally unwell.Seems silly to be chuffed at walking for ten minutes without ill affects when back in September I was happily ding 5k Park Run’s with no after affects.

I have been very lucky having such a supportive partner who has encouraged me to keep pushing on walking and exercise once I have reached a comfortable plateau. Also keeping an eye on what I am eating as I lost nearly a stone and was concerned I wasn’t putting much weight back on back in November time. Some of it is back now, although not as heavy as I did weigh and I am not complaining about that 🙂

For those with GF and seeing no improvement in sight, do keep a positive look, which believe you me is difficult, and try to alleviate stress as much as possible. One thing GF thrives on is stress. I have been using the Paul McKenna book and download calming session. I was a tad cynical of these previously but it seems to work and may be worth a go for some.

Keep Calm and Chill

Posted in Glandular fever, Music for 2016 with tags , , , on January 3, 2017 by The Rock 'N' Roll Oatcake

I do like compiling a playlist on Spotify 🙂 Like the old C90/60 compilation tapes made at home back in the 80’s. This one is relaxing music  and good for keeping the stress levels down, a key component in coping and dealing with glandular fever. Very much a work in progress this one…