Archive for Glandular fever

Glandular fever update #9

Posted in Family life, Glandular fever with tags , , on September 25, 2017 by The Rock 'N' Roll Oatcake

It has now been a year since I first started with a sore throat and generally feeling unwell, which led to tonsillitis and then glandular fever being confirmed by blood tests in later October. It has been a challenging year health wise and the various forums have been a help. I also started a Facebook page to help people with GF or after help for a member of their family who may have it.

I am much better now than this time last year thankfully, although I do know that stress can trigger some of the GF symptoms to come back. One of the most unusual ones I had was my tongue feeling like it was burning and/or wants to turn in on itself – of that makes sense! My neck glands start to get redder as well, bit like a red Incredible Hulk in miniature 🙂

My biggest bugbear is the medical websites make GF sound like it is a nasty illness but only for a few weeks, when in fact for many it can last months and sometimes years. I also hear stories of those who recovered in a week or two, not sure I believe that as you need a blood test to actually show GF/Epstein-Barr virus is present.

I am doing the Couch To 5K to get back into running and get my old fitness levels back. It is tough going and some days I am exhausted, although it is now a case of remembering how I felt before GF as everyone has days when they feel tired and not up for doing much. I keep taking my daily vitamins and rest when my body says it wants one. I have had one bad relapse to date and the support of my lovely family and friends helps a lot.

Glandular fever #8 relapses

Posted in Family life, Glandular fever with tags , , , on June 26, 2017 by The Rock 'N' Roll Oatcake

After a good couple of months recovery since February these past few days I have been seeing the glandular fever (GF) symptoms come back. These have included my glands inflaming on the left side of my neck, under my left armpit and the right side of my groin. Also the general feeling of being unwell – always hard to describe but I think people who have had GF know what I mean, you just don’t feel your normal self and it feels worse than say a day when you felt tired or a little low.

I am pretty sure this relapse has come about as I approach the first anniversary of my dad passing away – in fact happy birthday dad as he would have been 71 today 🙂 Even though I am trying to keep my positive mind set and avoid stress, in the background my mind and body are thinking otherwise causing these GF symptoms to come back. I will try and keep calm as possible, keep taking the Echinacea and vitamins as although GF is back, each relapse is normally not as bad or long as the initial bout. Anyone with similar experiences please do share them.

Glandular fever #7

Posted in Family life, Glandular fever, Running with tags , , , on May 10, 2017 by The Rock 'N' Roll Oatcake

Having been well on the road to recovery these past few weeks I was hoping that I’d seen the worst of glandular fever (GF) off, however it has come back (or a relapse) this past week. My neck glands are sore/swollen, feeling generally ‘yucky’ and my stomach is playing musical ‘tunes’ all day! Trying to see what caused it, it looks like increased stress although I have been keeping stress levels down as much as possible. Trouble is however much you try to occupy your thoughts elsewhere, they soon come back to any issues troubling you and this in turn seems to have an adverse affect on GF.

I am determined this won’t set me back too much and I am keeping up my daily vitamins (B’s and D are the key ones for GF), although sadly my return to running is on hold again. I will get out and have a run soon though, that’s a positive to keep me focused on riding this GF relapse out.

There really does need to be more awareness made of GF and how it can have long lasting impacts on people, albeit at varying levels.

Glandular fever #6

Posted in Family life, Glandular fever, Stoke City FC with tags , , on March 7, 2017 by The Rock 'N' Roll Oatcake

Week 24 in the Glandular Fever (GF) House! Well if my poor sense of humour is coming back then I must be getting back to some sort of normality 🙂

In the past few weeks have had a few relapses where I have felt really ill with GF, however as I now know what is coming I know how to deal with it a bit better. It is about pushing yourself but within limits as it can make you more ill. Good advice here on the Patient forum. Knowing that fine balance takes some time and although I am still fatigued/exhausted at the end of each day I take heart in the fact I have done a little more or achieved a goal I set e.g. going to my first gig last weekend since last summer.

Having good support from loved ones, family and friends is a big boost as well. GF is a very strange illness in that medicines can’t help it, just a good balance of vitamins, healthy food (with the odd cake 🙂 ) and rest helps. Unfortunately some people with GF can develop chronic fatigue syndrome/ME (NHS Direct puts it as high as 1 in 10) and that requires a whole different series of medical and practical steps. My then girlfriend, now wife, helped me push through the barrier if you like to prevent this happening to me which was a real possibility back in November last year. Take control of GF and not let it control you, not easy believe you me but doable.

I am keeping positive, trying to keep the stress low (stress is one of the biggest triggers in GF and it reoccurring ) and enjoying/appreciating everyday things in life more.

 

Walk All Over Cancer update

Posted in Cancer Research UK, Fundraising, News, Stoke City FC with tags , , , , , on March 3, 2017 by The Rock 'N' Roll Oatcake

https://fundraise.cancerresearchuk.org/page/team-aj

Day three of ‘Walk All Over Cancer’ which you have to aim to do 10,000 steps per day to raise funds for Cancer Research UK. The fundraising is up to ÂŁ145 which is really good. A BIG thank you to all our sponsors to date.

It is fun, but tough, doing 10,000 steps per day as I am still recovering from glandular fever  (GF) which comes back if I do too much. However, these relapses are not as bad as the early days with GF. I still take daily vitamins (including echinacea which I’d recommend), avoid caffeine and drinking plenty of water. I do give in to the odd cake and sugar treat 🙂

Water is good for flushing the Epstein-Barr virus out of your system. General advice is to drink at least eight large glasses of water a day.

GF seems to affect a lot of young athletes like Olympic gymnast Max Whitlock and promising young golfer Amber Ratcliffe. They all go on to full recovery, so if you currently have GF take heart as you will recover it just takes time and a sensible balance of rest and gradually increasing your activity levels.

Glandular fever #5

Posted in Glandular fever with tags , , , on January 24, 2017 by The Rock 'N' Roll Oatcake

For many glandular fever will be gone within a few weeks, however for some (and I am one of these) it can last for months the fatigue stage. As the NHS Direct website states: ‘While the symptoms of glandular fever can be very unpleasant, most of them should pass within two to three weeks. Fatigue, however, can occasionally last several months.’

Stress can bring it back, and also getting excited about things like say a trip out, can bring it back. You can’t win with this darn thing can you? Well you can, if you pace yourself and keep as positive as you can. That can be easier said than done, however focus on something you lie be it music, books, your family and loved ones, your faith (a lot of GF stories I have read the people have a string religious belief).

recovery

I have been feeling a little ill again in the past couple of weeks as GF has come back a bit, mainly as I have been doing a little too much. So trying to get the life/work balance right and it is by trail and error really, as unless you push yourself a little you will reach a plateau and not do much more.

This posting on the Patient forum for Infectious Mononucleosis sums it up nicely:

‘…it’s such a hard virus to deal with and it’s important people know there is hope and recovery at the end of the road for everyone reading this who is or has been struggling with mono/glandular fever and just feels weary and tired and scared, which is more than understandable given the circumstances.

It is different for everyone, for me I would say the biggest turning point came around after 9 months, and although it still took a little while after then to feel completely normal I was able to live a much more normal life from then on, so long as I paced myself and still took care. It did still take me a while to get back working full time again, but I think my confidence and things were shaken a bit too in that respect, and it’s important to phase things in and not just jump back in to the deep end, I think that definitely helps.

Everyone is different though, some people recover quicker, and often it’s a zig-zag kind of recovery, where sometimes you can get mini set backs and wonder if you’re back to square one – be assured that you’re not if feeling that way today it’s just part of the recovery process, and you definitely will get better – there is hope and recovery for everyone with this horrible virus, your body eventually gets on top of it and then it can harm you no more!’

Glandular fever #4

Posted in Family life, Glandular fever with tags , on January 17, 2017 by The Rock 'N' Roll Oatcake

After my busiest weekend yet since having glandular fever (GF) today and yesterday GF came back. However, I am managing it better and although my tongue feels horrible and has ulcers on it and my neck glands are up, plus good old wind is there, I still feel better than I would have done back in November. To be fair back in November I could hardly get to the end of the garden and back.

The hardest part now is doing enough but not too much, and the fact I am not used to being ill this long, nor are my family and loved ones used to this either. It is a strange illness in that not many visible signs can be seen, unless someone sees you every day they won’t see much change either when you start to recover.

I am still taking my daily vitamins and Echinacea plus walking for at least twenty minutes a day. You have to make and adapt your own routine as it affects each person differently, almost like GF pings around your glands and body organs seeing what ‘fun’ and havoc it can have!

I also keep a list of good moments in my Joy List. Fear not though I am not turning into some tree hugger 🙂

Enjoy yourselves and take time out to appreciate things.

everyday